My life took me for an unimaginable emotional and physical battle for over 5 years when I began having uncontrollable seizures in October of 2009.
The truth is that having epilepsy/seizures is terrifying. There's no way to express the feeling of losing memory of a whole day, let alone losing control of your entire body at any possible moment. Having a seizure is extremely exhausting on your entire body and mind, and finding a treatment that works for you can be a long hard battle, with a lot of side effects to work out. I spent many days each month in the hospital for years trying to get my seizures under control and find the right combination of medication that would work for me. Those medications left me with a long list of side effects to deal with on top of having seizures; rashes, vomiting, slowed speech, memory problems, numbness and tingling of the hands and feet, difficulty concentrating, mood swings, extreme thirst, weight loss, irregular/pounding heartbeat etc. Going through highschool during this time, I also experienced an unbelievable amount of bullying, and learned just how real it is. Ultimately, this led to me leaving my high school during the start of my senior year, and completing my education online. My seizures made me fear everything in life; relationships, school, going to the store, driving, going to work. I had to teach myself that having seizures isn't the end of the world, it doesn't become you, unless you so choose to let it.
My doctors concluded after trial and error and EEG testing that I was experiencing a combination of both epileptic and non-epileptic seizures. The stress of having epileptic seizures (short lasting grand-mal), was decided to be most likely causing me to have non-epileptic seizures (very long-lasting seizures). For five years my battle with epilepsy continued. I was one of the lucky ones however, my seizures stopped.
While I've been fortunate enough to have been seizure free for almost four years now, I also try hard to remember that at any moment, my seizures could come back in the blink of an eye. I don't for a second forget those who are still facing this battle and experience this on a regular basis. Please help me raise funding and awareness for Epilepsy. You can do this by joining my team and participating in Sharon's ride.run.walk, making a donation towards my team, or helping me spread the word through social media and with those in your life.
“I have epilepsy, but epilepsy doesn’t have me.”
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